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National & Local Support Groups


Resources & Support

Resources are endless and your journey for answers shouldn't stop here. Please visit these blogs and/or contact the organizations below for further support and event information related to Down syndrome.


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National Down Syndrome Society 800-221-4602

National Down Syndrome Congress 800-232-6372



Parent Advocates Down Syndrome 205-988-0810

B.U.D.S. 256-728-7593


NDSC Alaska 907-244-0455


Sharing Down Syndrome Arizona 480-926-6500

DS Network Arizona 480-759-9150

S.A.N.D.S. 520-477-2637

The Down Syndrome Connection 520-298-3639


Arkansas Down Syndrome Association 501-223-3696

Down Syndrome Connection of Northwest Arkansas 479-601-2923

Down Syndrome Association of Northeast Arkansas 870-273-6997


Down Syndrome Association of Los Angeles 818-786-0001

Down Syndrome Connection of the Bay Area 925-362-8660

Down Syndrome Association of Orange County 714-540-5794

Down Syndrome Association of Central California 559-228-0411

Down Syndrome Association of San Diego 619-594-7389

Sonoma County Down Syndrome Support Group 415-457-5578

Down Syndrome Foundation of Orange County 949-757-1177

Down Syndrome Information Alliance (Greater Sacramento) 916-658-1686


Mile High Down Syndrome Association 303-797-1699

Colorado Springs Down Syndrome Association 719-633-1133

Denver Adult Down Syndrome Clinic 303-762-6545


Connecticut Down Syndrome Congress 888-486-8537


Down Syndrome Association of Delaware 302-995-1004


Down Syndrome Association of Central Florida 407-478-5621

Down Syndrome Foundation of Florida 407-538-3537

Gold Coast Down Syndrome Organization 561-912-1231

Down Syndrome Association of Jacksonville 904-353-6300

Central Florida D.A.D.S. 407-504-1747


Down Syndrome Association of Atlanta 404-320-3233

Lowcountry Down Syndrome Society 912-728-8505


Hawaii Down Syndrome Congress 808-949-1999


Treasure Valley Down Syndrome Association 208-559-2753


Heart of Illinois Down Syndrome Association 309-712-4852

Central Illinois Down Syndrome Organization 390-378-2388

Ups for Downs 847-895-2100

Down Syndrome Development Council 847-265-8482


Down Syndrome Indiana 317-925-7617

Down Syndrome Association of Northwest Indiana 219-838-3656

Down Syndrome Association Northeast Indiana 260-471-9964

Down Syndrome of Louisville (Southern Indiana) 502-495-5088


Hawkeye Area Down Syndrome Association 319-775-5146


Down Syndrome Guild of Greater Kansas City 913-384-4848

Down Syndrome Society of Wichita 316-734-8093

North Central Kansas Down Syndrome Society 785-285-1777


Down Syndrome of Louisville 502-495-5088

Green River Area Down Syndrome Association 270-925-0195

Down Syndrome Association of Central Kentucky 859-494-7809


Down Syndrome Association of Acadiana 337-234-3109

Down Syndrome Association of Great New Orleans 504-259-6201


Southern Maine Down Syndrome Network 866-571-2223


Chesapeake Down Syndrome Parent Group 410-321-5434

Down Syndrome Network of Montgomery County 301-979-1112


Massachusetts Down Syndrome Congress 781-221-0024

Down Syndrome Resource Group of Western Massachusetts 413-562-7395


Down Syndrome Guild of South East Michigan 248-327-6154

Down Syndrome Association of West Michigan 616-956-3488

Families Exploring Down Syndrome 586-997-7607

Central Michigan Down Syndrome Society 989-621-5697

Down Syndrome Association of North West Michigan 231-342-5433


Down Syndrome Association of Minnesota 651-603-0720


Central Mississippi Down Syndrome Society 601-397-3696

Northeast Mississippi Down Syndrome Society 662-869-3211


Down Syndrome Association of Greater St. Louis 314-961-2504

Down Syndrome Group of the Ozarks 888-655-5173


Parents of Down Syndrome Support Group 406-256-3442


Down Syndrome Association for Families of Nebraska 402-421-1338

Down Syndrome Alliance of the Midlands 402-991-1800


Down Syndrome Organization of Southern Nevada 702-648-1990

Down Syndrome Network of Northern Nevada 775-828-5159

New Hampshire

Northern New England Down Syndrome Congress 603-622-6904

New Jersey

Bringing Up Down Syndrome 856-985-5885

Down Syndrome Association of Central New Jersey 866-369-6796

Down Syndrome Group of Northwest New Jersey 908-689-7525 X320

New Mexico

Southern New Mexico Down Syndrome Families 402-670-0596

Down Syndrome Foundation of Southeastern New Mexico 575-622-1099

New York

Down Syndrome Parents Group of Western New York 716-832-9334

Association for Children with Down Syndrome 516-933-4700

North Carolina

Down Syndrome Association of North Carolina 704-536-2163

Piedmont Down Syndrome Support Group 336-714-9120

Triangle Down Syndrome Network 919-803-0515

North Dakota

Designer Genes of North Dakota 701-258-7421


Down Syndrome Association of Central Ohio 614-263-6020

Down Syndrome Association of Greater Cincinnati 513-761-5400

The Upside of Downs 216-447-1955

Miami Valley Down Syndrome Association 937-222-0744

Down Syndrome Association of the Valley 330-726-3727


Down Syndrome Association of Central Oklahoma 405-330-5025

Down Syndrome Association of Tulsa 918-496-1873


Down Syndrome Network of Oregon 503-636-4860

Down Syndrome Association of Southern Oregon 541-776-9805

Willimette Valley Down Syndrome Association 503-769-7403


Eastern PA Down Syndrome Center 610-402-0184

Central PA Down Syndrome Awareness Group 717-218-0242

Montgomery County Down Syndrome Interest Group 610-754-1483

Chester County Down Syndrome Interest Group 610-889-0291

Rhode Island

Down Syndrome Society of Rhode Island 401-463-5751

South Carolina

Down Syndrome Family Alliance of Greenville 864-630-0500

Down Syndrome Association of Lowcountry 843-553-3725

South Dakota

New Directions Down Syndrome Association 605-610-8026


Down Syndrome Association of Middle Tennesse 615-386-9002

Down Syndrome Awareness Group of East Tennessee 866-202-8867

Down Syndrome Association of Memphis & the Mid-South 901-547-7588

IDSC For Life 901-413-2047


Down Syndrome Association of Central Texas 512-323-0808

Down Sydrome Guild of Dallas 214-267-1374

Down Syndrome Association of San Antonio 210-349-4372

Down Syndrome Partnership of Tarrant County 817-390-2970

Down Syndrome Association of Brazos Valley 979-778-7010

Down Syndrome Association of Houston 713-682-7237


Utah Down Syndrome Foundation 801-446-1994

Southern Utah Down Syndrome Association 435-632-7719


Vermont Family Network 800-800-4005


Down Syndrome Association of Hampton Roads 757-466-3696

Down Syndrome Association of Greater Richmond 804-796-5141

Down Syndrome Association of Roanoke 540-772-6460

Down Syndrome Association of Virginia Penninsula 757-969-9263

Down Syndrome Association of Northern Virginia 703-621-7129


South Puget Sound Up with Down Syndrome 360-915-6276

West Virginia

Down Syndrome Network of West Virginia 304-342-3358


Down Syndrome Association of Wisconsin 414-327-3729

Madison Area Down Syndrome Society 608-692-7653


Wyoming Down Syndrome Association 307-742-6641

Photo by Annika Leigh

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* is in no way connected or affiliated with the events, websites, blogs or support groups below. We are not liable for any information, transaction, or advice given by these support groups. Beliefs and opinions related to Down syndrome may vary between groups and individuals.

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