National & Local Support Groups
Resources & Support
Resources are endless and your journey for answers shouldn't stop here. Please visit these blogs and/or contact the organizations below for further support and event information related to Down syndrome.
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*National*
National Down Syndrome Society 800-221-4602
National Down Syndrome Congress 800-232-6372
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Alabama
Parent Advocates Down Syndrome 205-988-0810
B.U.D.S. 256-728-7593
Alaska
NDSC Alaska 907-244-0455
Arizona
Sharing Down Syndrome Arizona 480-926-6500
DS Network Arizona 480-759-9150
S.A.N.D.S. 520-477-2637
The Down Syndrome Connection 520-298-3639
Arkansas
Arkansas Down Syndrome Association 501-223-3696
Down Syndrome Connection of Northwest Arkansas 479-601-2923
Down Syndrome Association of Northeast Arkansas 870-273-6997
California
Down Syndrome Association of Los Angeles 818-786-0001
Down Syndrome Connection of the Bay Area 925-362-8660
Down Syndrome Association of Orange County 714-540-5794
Down Syndrome Association of Central California 559-228-0411
Down Syndrome Association of San Diego 619-594-7389
Sonoma County Down Syndrome Support Group 415-457-5578
Down Syndrome Foundation of Orange County 949-757-1177
Down Syndrome Information Alliance (Greater Sacramento) 916-658-1686
Colorado
Mile High Down Syndrome Association 303-797-1699
Colorado Springs Down Syndrome Association 719-633-1133
Denver Adult Down Syndrome Clinic 303-762-6545
Connecticut
Connecticut Down Syndrome Congress 888-486-8537
Delaware
Down Syndrome Association of Delaware 302-995-1004
Florida
Down Syndrome Association of Central Florida 407-478-5621
Down Syndrome Foundation of Florida 407-538-3537
Gold Coast Down Syndrome Organization 561-912-1231
Down Syndrome Association of Jacksonville 904-353-6300
Central Florida D.A.D.S. 407-504-1747
Georgia
Down Syndrome Association of Atlanta 404-320-3233
Lowcountry Down Syndrome Society 912-728-8505
Hawaii
Hawaii Down Syndrome Congress 808-949-1999
Idaho
Treasure Valley Down Syndrome Association 208-559-2753
Illinois
Heart of Illinois Down Syndrome Association 309-712-4852
Central Illinois Down Syndrome Organization 390-378-2388
Ups for Downs 847-895-2100
Down Syndrome Development Council 847-265-8482
Indiana
Down Syndrome Indiana 317-925-7617
Down Syndrome Association of Northwest Indiana 219-838-3656
Down Syndrome Association Northeast Indiana 260-471-9964
Down Syndrome of Louisville (Southern Indiana) 502-495-5088
Iowa
Hawkeye Area Down Syndrome Association 319-775-5146
Kansas
Down Syndrome Guild of Greater Kansas City 913-384-4848
Down Syndrome Society of Wichita 316-734-8093
North Central Kansas Down Syndrome Society 785-285-1777
Kentucky
Down Syndrome of Louisville 502-495-5088
Green River Area Down Syndrome Association 270-925-0195
Down Syndrome Association of Central Kentucky 859-494-7809
Louisiana
Down Syndrome Association of Acadiana 337-234-3109
Down Syndrome Association of Great New Orleans 504-259-6201
Maine
Southern Maine Down Syndrome Network 866-571-2223
Maryland
Chesapeake Down Syndrome Parent Group 410-321-5434
Down Syndrome Network of Montgomery County 301-979-1112
Massachusetts
Massachusetts Down Syndrome Congress 781-221-0024
Down Syndrome Resource Group of Western Massachusetts 413-562-7395
Michigan
Down Syndrome Guild of South East Michigan 248-327-6154
Down Syndrome Association of West Michigan 616-956-3488
Families Exploring Down Syndrome 586-997-7607
Central Michigan Down Syndrome Society 989-621-5697
Down Syndrome Association of North West Michigan 231-342-5433
Minnesota
Down Syndrome Association of Minnesota 651-603-0720
Mississippi
Central Mississippi Down Syndrome Society 601-397-3696
Northeast Mississippi Down Syndrome Society 662-869-3211
Missouri
Down Syndrome Association of Greater St. Louis 314-961-2504
Down Syndrome Group of the Ozarks 888-655-5173
Montana
Parents of Down Syndrome Support Group 406-256-3442
Nebraska
Down Syndrome Association for Families of Nebraska 402-421-1338
Down Syndrome Alliance of the Midlands 402-991-1800
Nevada
Down Syndrome Organization of Southern Nevada 702-648-1990
Down Syndrome Network of Northern Nevada 775-828-5159
New Hampshire
Northern New England Down Syndrome Congress 603-622-6904
New Jersey
Bringing Up Down Syndrome 856-985-5885
Down Syndrome Association of Central New Jersey 866-369-6796
Down Syndrome Group of Northwest New Jersey 908-689-7525 X320
New Mexico
Southern New Mexico Down Syndrome Families 402-670-0596
Down Syndrome Foundation of Southeastern New Mexico 575-622-1099
New York
Down Syndrome Parents Group of Western New York 716-832-9334
Association for Children with Down Syndrome 516-933-4700
North Carolina
Down Syndrome Association of North Carolina 704-536-2163
Piedmont Down Syndrome Support Group 336-714-9120
Triangle Down Syndrome Network 919-803-0515
North Dakota
Designer Genes of North Dakota 701-258-7421
Ohio
Down Syndrome Association of Central Ohio 614-263-6020
Down Syndrome Association of Greater Cincinnati 513-761-5400
The Upside of Downs 216-447-1955
Miami Valley Down Syndrome Association 937-222-0744
Down Syndrome Association of the Valley 330-726-3727
Oklahoma
Down Syndrome Association of Central Oklahoma 405-330-5025
Down Syndrome Association of Tulsa 918-496-1873
Oregon
Down Syndrome Network of Oregon 503-636-4860
Down Syndrome Association of Southern Oregon 541-776-9805
Willimette Valley Down Syndrome Association 503-769-7403
Pennsylvania
Eastern PA Down Syndrome Center 610-402-0184
Central PA Down Syndrome Awareness Group 717-218-0242
Montgomery County Down Syndrome Interest Group 610-754-1483
Chester County Down Syndrome Interest Group 610-889-0291
Rhode Island
Down Syndrome Society of Rhode Island 401-463-5751
South Carolina
Down Syndrome Family Alliance of Greenville 864-630-0500
Down Syndrome Association of Lowcountry 843-553-3725
South Dakota
New Directions Down Syndrome Association 605-610-8026
Tennessee
Down Syndrome Association of Middle Tennesse 615-386-9002
Down Syndrome Awareness Group of East Tennessee 866-202-8867
Down Syndrome Association of Memphis & the Mid-South 901-547-7588
IDSC For Life 901-413-2047
Texas
Down Syndrome Association of Central Texas 512-323-0808
Down Sydrome Guild of Dallas 214-267-1374
Down Syndrome Association of San Antonio 210-349-4372
Down Syndrome Partnership of Tarrant County 817-390-2970
Down Syndrome Association of Brazos Valley 979-778-7010
Down Syndrome Association of Houston 713-682-7237
Utah
Utah Down Syndrome Foundation 801-446-1994
Southern Utah Down Syndrome Association 435-632-7719
Vermont
Vermont Family Network 800-800-4005
Virginia
Down Syndrome Association of Hampton Roads 757-466-3696
Down Syndrome Association of Greater Richmond 804-796-5141
Down Syndrome Association of Roanoke 540-772-6460
Down Syndrome Association of Virginia Penninsula 757-969-9263
Down Syndrome Association of Northern Virginia 703-621-7129
Washington
South Puget Sound Up with Down Syndrome 360-915-6276
West Virginia
Down Syndrome Network of West Virginia 304-342-3358
Wisconsin
Down Syndrome Association of Wisconsin 414-327-3729
Madison Area Down Syndrome Society 608-692-7653
Wyoming
Wyoming Down Syndrome Association 307-742-6641
Photo by Annika Leigh
*Knowmefirst.com is in no way connected or affiliated with the events, websites, blogs or support groups below. We are not liable for any information, transaction, or advice given by these support groups. Beliefs and opinions related to Down syndrome may vary between groups and individuals.
Blogs & Websites
Down Syndrome New Mama downsyndromenewmama.blogspot.com
Enjoying The Small Things kellehampton.com
Got Down Syndrome gotdownsyndrome.blogspot.com Down Wit Dat downwitdat.blogspot.com
Noah's Dad noahsdad.com
Bringing The Sunshine bringingthesunshine.com
Welcome To Our House welcometoourhouse-ds.com
My Special K's myspecialks.com Our Unexpected Journey ourunexpectedjourney.blogspot.com
Chaos Diaries thenewfaceofdowns.org/blog
My Three Sons theamicks-angela.blogspot.com
Big Blueberry Eyes mdbeau.blogspot.com
Ralph & the Crew ralphcrew.blogspot.com Our Eyes Opened oureyesopened.blogspot.com
Cause of our Joy cause-of-our-joy.blogspot.com
Bill & Ria billandria.blogspot.com
Gillian Marchenko gillianmarchenko.com
Finnians Journey finniansjourney.blogspot.com
The Seal Bark sealbark.blogspot.com
Life with 5 Leggs lotsofleggs.blogspot.com
Zoromski Chronicles zoromski.blogspot.com
Cornish Adoption Journey cornishadoptionjourney.blogspot.com
Our Perfectly Imperfect Family ourperfectlyimperfectlife.com
The Bates Motel thebatesmotel3.blogspot.com
The Ordinary Life of an Extrordinary Girl downsyndrometeenager.blogspot.com
Gabriel Updates gabrielupdates.blogspot.com
Ruby's Life cheryl-rubyslife.com
Saving Sofia savingsofia.blogspot.com
Mama Monkmee mamamonkmee.blogspot.com
With a Little Moxie withalittlemoxie.com
