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National & Local Support Groups

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Resources & Support

Resources are endless and your journey for answers shouldn't stop here. Please visit these blogs and/or contact the organizations below for further support and event information related to Down syndrome.

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*National*

National Down Syndrome Society 800-221-4602

National Down Syndrome Congress 800-232-6372

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Alabama

Parent Advocates Down Syndrome 205-988-0810

B.U.D.S. 256-728-7593

Alaska

NDSC Alaska 907-244-0455

Arizona

Sharing Down Syndrome Arizona 480-926-6500

DS Network Arizona 480-759-9150

S.A.N.D.S. 520-477-2637

The Down Syndrome Connection 520-298-3639

Arkansas

Arkansas Down Syndrome Association 501-223-3696

Down Syndrome Connection of Northwest Arkansas 479-601-2923

Down Syndrome Association of Northeast Arkansas 870-273-6997

California

Down Syndrome Association of Los Angeles 818-786-0001

Down Syndrome Connection of the Bay Area 925-362-8660

Down Syndrome Association of Orange County 714-540-5794

Down Syndrome Association of Central California 559-228-0411

Down Syndrome Association of San Diego 619-594-7389

Sonoma County Down Syndrome Support Group 415-457-5578

Down Syndrome Foundation of Orange County 949-757-1177

Down Syndrome Information Alliance (Greater Sacramento) 916-658-1686

Colorado

Mile High Down Syndrome Association 303-797-1699

Colorado Springs Down Syndrome Association 719-633-1133

Denver Adult Down Syndrome Clinic 303-762-6545

Connecticut

Connecticut Down Syndrome Congress 888-486-8537

Delaware

Down Syndrome Association of Delaware 302-995-1004

Florida

Down Syndrome Association of Central Florida 407-478-5621

Down Syndrome Foundation of Florida 407-538-3537

Gold Coast Down Syndrome Organization 561-912-1231

Down Syndrome Association of Jacksonville 904-353-6300

Central Florida D.A.D.S. 407-504-1747

Georgia

Down Syndrome Association of Atlanta 404-320-3233

Lowcountry Down Syndrome Society 912-728-8505

Hawaii

Hawaii Down Syndrome Congress 808-949-1999

Idaho

Treasure Valley Down Syndrome Association 208-559-2753

Illinois

Heart of Illinois Down Syndrome Association 309-712-4852

Central Illinois Down Syndrome Organization 390-378-2388

Ups for Downs 847-895-2100

Down Syndrome Development Council 847-265-8482

Indiana

Down Syndrome Indiana 317-925-7617

Down Syndrome Association of Northwest Indiana 219-838-3656

Down Syndrome Association Northeast Indiana 260-471-9964

Down Syndrome of Louisville (Southern Indiana) 502-495-5088

Iowa

Hawkeye Area Down Syndrome Association 319-775-5146

Kansas

Down Syndrome Guild of Greater Kansas City 913-384-4848

Down Syndrome Society of Wichita 316-734-8093

North Central Kansas Down Syndrome Society 785-285-1777

Kentucky

Down Syndrome of Louisville 502-495-5088

Green River Area Down Syndrome Association 270-925-0195

Down Syndrome Association of Central Kentucky 859-494-7809

Louisiana

Down Syndrome Association of Acadiana 337-234-3109

Down Syndrome Association of Great New Orleans 504-259-6201

Maine

Southern Maine Down Syndrome Network 866-571-2223

Maryland

Chesapeake Down Syndrome Parent Group 410-321-5434

Down Syndrome Network of Montgomery County 301-979-1112

Massachusetts

Massachusetts Down Syndrome Congress 781-221-0024

Down Syndrome Resource Group of Western Massachusetts 413-562-7395

Michigan

Down Syndrome Guild of South East Michigan 248-327-6154

Down Syndrome Association of West Michigan 616-956-3488

Families Exploring Down Syndrome 586-997-7607

Central Michigan Down Syndrome Society 989-621-5697

Down Syndrome Association of North West Michigan 231-342-5433

Minnesota

Down Syndrome Association of Minnesota 651-603-0720

Mississippi

Central Mississippi Down Syndrome Society 601-397-3696

Northeast Mississippi Down Syndrome Society 662-869-3211

Missouri

Down Syndrome Association of Greater St. Louis 314-961-2504

Down Syndrome Group of the Ozarks 888-655-5173

Montana

Parents of Down Syndrome Support Group 406-256-3442

Nebraska

Down Syndrome Association for Families of Nebraska 402-421-1338

Down Syndrome Alliance of the Midlands 402-991-1800

Nevada

Down Syndrome Organization of Southern Nevada 702-648-1990

Down Syndrome Network of Northern Nevada 775-828-5159

New Hampshire

Northern New England Down Syndrome Congress 603-622-6904

New Jersey

Bringing Up Down Syndrome 856-985-5885

Down Syndrome Association of Central New Jersey 866-369-6796

Down Syndrome Group of Northwest New Jersey 908-689-7525 X320

New Mexico

Southern New Mexico Down Syndrome Families 402-670-0596

Down Syndrome Foundation of Southeastern New Mexico 575-622-1099

New York

Down Syndrome Parents Group of Western New York 716-832-9334

Association for Children with Down Syndrome 516-933-4700

North Carolina

Down Syndrome Association of North Carolina 704-536-2163

Piedmont Down Syndrome Support Group 336-714-9120

Triangle Down Syndrome Network 919-803-0515

North Dakota

Designer Genes of North Dakota 701-258-7421

Ohio

Down Syndrome Association of Central Ohio 614-263-6020

Down Syndrome Association of Greater Cincinnati 513-761-5400

The Upside of Downs 216-447-1955

Miami Valley Down Syndrome Association 937-222-0744

Down Syndrome Association of the Valley 330-726-3727

Oklahoma

Down Syndrome Association of Central Oklahoma 405-330-5025

Down Syndrome Association of Tulsa 918-496-1873

Oregon

Down Syndrome Network of Oregon 503-636-4860

Down Syndrome Association of Southern Oregon 541-776-9805

Willimette Valley Down Syndrome Association 503-769-7403

Pennsylvania

Eastern PA Down Syndrome Center 610-402-0184

Central PA Down Syndrome Awareness Group 717-218-0242

Montgomery County Down Syndrome Interest Group 610-754-1483

Chester County Down Syndrome Interest Group 610-889-0291

Rhode Island

Down Syndrome Society of Rhode Island 401-463-5751

South Carolina

Down Syndrome Family Alliance of Greenville 864-630-0500

Down Syndrome Association of Lowcountry 843-553-3725

South Dakota

New Directions Down Syndrome Association 605-610-8026

Tennessee

Down Syndrome Association of Middle Tennesse 615-386-9002

Down Syndrome Awareness Group of East Tennessee 866-202-8867

Down Syndrome Association of Memphis & the Mid-South 901-547-7588

IDSC For Life 901-413-2047

Texas

Down Syndrome Association of Central Texas 512-323-0808

Down Sydrome Guild of Dallas 214-267-1374

Down Syndrome Association of San Antonio 210-349-4372

Down Syndrome Partnership of Tarrant County 817-390-2970

Down Syndrome Association of Brazos Valley 979-778-7010

Down Syndrome Association of Houston 713-682-7237

Utah

Utah Down Syndrome Foundation 801-446-1994

Southern Utah Down Syndrome Association 435-632-7719

Vermont

Vermont Family Network 800-800-4005

Virginia

Down Syndrome Association of Hampton Roads 757-466-3696

Down Syndrome Association of Greater Richmond 804-796-5141

Down Syndrome Association of Roanoke 540-772-6460

Down Syndrome Association of Virginia Penninsula 757-969-9263

Down Syndrome Association of Northern Virginia 703-621-7129

Washington

South Puget Sound Up with Down Syndrome 360-915-6276

West Virginia

Down Syndrome Network of West Virginia 304-342-3358

Wisconsin

Down Syndrome Association of Wisconsin 414-327-3729

Madison Area Down Syndrome Society 608-692-7653

Wyoming

Wyoming Down Syndrome Association 307-742-6641

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*Knowmefirst.com is in no way connected or affiliated with the events, websites, blogs or support groups below. We are not liable for any information, transaction, or advice given by these support groups. Beliefs and opinions related to Down syndrome may vary between groups and individuals.

Blogs & Websites

Down Syndrome New Mama downsyndromenewmama.blogspot.com

Enjoying The Small Things kellehampton.com

Got Down Syndrome gotdownsyndrome.blogspot.com Down Wit Dat downwitdat.blogspot.com

Noah's Dad noahsdad.com

Bringing The Sunshine bringingthesunshine.com

Welcome To Our House welcometoourhouse-ds.com

My Special K's myspecialks.com Our Unexpected Journey ourunexpectedjourney.blogspot.com

Chaos Diaries thenewfaceofdowns.org/blog

My Three Sons theamicks-angela.blogspot.com

Big Blueberry Eyes mdbeau.blogspot.com

Ralph & the Crew ralphcrew.blogspot.com Our Eyes Opened oureyesopened.blogspot.com

Cause of our Joy cause-of-our-joy.blogspot.com

Bill & Ria billandria.blogspot.com

Gillian Marchenko gillianmarchenko.com

Finnians Journey finniansjourney.blogspot.com

The Seal Bark sealbark.blogspot.com

Life with 5 Leggs lotsofleggs.blogspot.com

Zoromski Chronicles zoromski.blogspot.com

Cornish Adoption Journey cornishadoptionjourney.blogspot.com

Our Perfectly Imperfect Family ourperfectlyimperfectlife.com

The Bates Motel thebatesmotel3.blogspot.com

The Ordinary Life of an Extrordinary Girl downsyndrometeenager.blogspot.com

Gabriel Updates gabrielupdates.blogspot.com

Ruby's Life cheryl-rubyslife.com

Saving Sofia savingsofia.blogspot.com

Mama Monkmee mamamonkmee.blogspot.com

With a Little Moxie withalittlemoxie.com

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